Community Guidelines

Ionis Digital Community Guidelines 

At Ionis, our digital channels aim to support, motivate and educate patients, healthcare providers, caregivers, as well as media, investors and job seekers. We are excited to have you join the conversation and to ensure that our online spaces remain respectful, inclusive, and enjoyable for everyone, we have established a set of community guidelines. 

Our Digital Community Guidelines apply across official Ionis corporate channels, campaign or marketing channels, and any digital channels we may add in the future. Our guidelines apply in addition to each channel’s own Terms of Service. Please visit X (formerly Twitter), LinkedIn, Glassdoor, Instagram, Facebook or YouTube to explore their terms.

By participating in our community, you agree to abide by these rules and help us maintain a welcoming space for all.

  1. Engage on Topic and Be Respectful

    We’re focused on fostering a thoughtful community online. Please be respectful and remain on topic in relation to what we are discussing. If you have a question or comment that is off topic, such as surrounding medicines, business opportunities or sponsorships, please contact us. 

  2. Legal and Regulatory Topics

    Ionis is a public company in a highly regulated industry and subject to specific rules surrounding how we can engage with the public. Because of this, we may not be able to always address your comments or questions directly on our channels.

    Discussions should remain on-topic and constructive. Please be aware we may not be able to respond, we may block/delete commenters or remove comments, replies or direct messages that mention:

    • Ionis medicines or other pharmaceutical companies (this includes making claims about a product and “off-label”, or unapproved uses of products) including inappropriate comments or inferences about our competitors (e.g., disparaging comments, statements about their products)
    • Health or medical advice
    • False or misleading information
    • Third-party property that is copyright protected or trademarked, unless previously approved by the party involved
    • Proprietary, confidential, sensitive or non-public information
    • Posts related to current or future litigation in which Ionis is involved
    • Information plagiarized from another source
    • Photos and/or videos, including those depicting individuals, unless the photographer (and, where applicable, the depicted individual, and if the depicted individual is a child, the child’s parent’s or legal guardian) or videographer have expressly consented to such use
    • The names of any individuals, and/or other information that could allow anyone to identify the individual(s), such as an address, phone number, social insurance number, license plate number, hometown, school, etc., unless those individuals have expressly consented to such use
    • The names, photographs, voices or other likeness of celebrities, either living or dead, whether favorable or unfavorable
    • Predatory conduct towards minors
    • Threats, libel, slander or defamation of character
    • Inappropriate or “off color” statements
    • Text, pictures or images that could be described as obscene, profane, lewd, crude, vulgar, offensive, provocative or pornographic, or as containing gang signs or symbols, gun imagery, political or religious propaganda, derogatory characterizations of any ethnic, racial, sexual or religious group, depictions of alcohol or drug abuse, or promotion of illegal activity of any kind
    • Links to other websites
    • Advertising, posts that are commercial in nature, or spam
    • Software viruses, Trojan horses, worms, time bombs or any other computer code or files or disabling mechanisms that are designed to disrupt, damage or limit the functioning of any software, hardware, telecommunications equipment or that interferes with the operation of the social media site
    • Posts that violate the Terms of Service of any of the digital platforms where we engage

  3. Medical and Professional Advice

    While the team that manages our digital channels has knowledge about the topics posted, we are only posting educational information about our company, including the scientific & therapeutic areas of focus, and not professional or medical advice. Ionis cannot offer medical advice or engage in product promotion or discussion about treatment options made by us or any other companies. 

    If you need medical or professional advice, please contact your physician or healthcare provider. To report an adverse event or safety concern with use of an Ionis product, please call (800) 491-2664 or email adverseevent@ionis.com. If you or the patient who took Ionis product are experiencing a medical emergency, please dial local emergency services such as 911 or 112. For any other assistance, please call our Corporate Headquarters at (760) 931-9200 or email adverseevent@ionis.com. In the United States, you may also report side effects to the U.S. Food and Drug Administration (FDA) by calling 1-800- FDA-1088 or email FAERSesub@fda.hhs.gov.

  4. Two-Way Engagement

    When you engage with Ionis digital channels, you grant us permission to engage back in the form of reposts, shares, or comments, including the use of your handle and the images, videos, and text associated with your posts. Do not publicly post or tag us in anything you’d like to remain confidential, including an idea that you wish to keep private and/or wish to receive compensation for, as we do not and will not compensate you.

  5. Using and Storing Personal Identifying Information

    Ionis will not disclose or share personal identifying information on our digital channels unless we have obtained proper consents. In the case of reporting a side effect or issue with a product, we will need to store your name, location, health-related information in accordance with applicable laws. For more on information and how we collect it, please see our Privacy Policy.

  6. Third Party Activities

    Ionis does not endorse third party activities across any digital channels. Ionis may decide to feature, favorite, comment on, retweet, share or create content published by third parties. Such engagement is in no case to be considered as an endorsement of the featured accounts/handles or of their activities.

    Ionis is in no case to be held responsible for the activity of the accounts/handles it follows or from which it selects posts to engage with, favorite, share, comment on, or retweet through official Ionis accounts. Updates posted on Ionis digital channels may contain links to websites and other contents that are not owned or controlled by Ionis.

    In addition, the posting of a link by Ionis directing to a third party’s website or content shall in no case be considered as an endorsement of such content or website and Ionis shall in no case be held responsible of any use to which such content or website may be put.

  7. Additional Considerations
    • You must be at least 13 years old to engage with us on X, Instagram and YouTube; 16 for LinkedIn.
    • If you are a minor in your jurisdiction (but at least 13 or 16, depending on the specific digital channel as detailed above), please do not engage with Ionis channels without the knowledge and permission of a parent or legal guardian.
    • If you are an adult, and your message contains the name or likeness of a minor, you must be the parent or legal guardian of that minor.
    • Your posts, replies or direct messages may also be submitted to law enforcement if we have a reasonable belief that disclosure of such information is reasonably necessary to detect and prevent fraud or to protect the safety of the public or an individual.

 

Community Engagement Guidelines updated as of August 1, 2025