Privacy Policy

Please read this privacy policy carefully before using this website. This Online Privacy Policy informs our visitors how we treat personal information that you may provide us using this website.

Data Collection
Ionis respects the privacy of visitors to our website and only collects personal information when you provide it to us voluntarily. You may visit our website without telling us anything about yourself. If you contact us and choose to provide personally identifiable information, such as your name, address, telephone number or e-mail address, we may combine that information with data you share with us offline. We will use this information and may share it with other companies and/or individuals (e.g., our partners, consultants, and service providers) for the purpose for which you submitted it to us. For example, if you requested information regarding a particular program, we may use the information you provide to respond to your inquiry or to provide you with information that you requested. We will not send unsolicited messages to users of our website who indicate they do not wish to receive such messages. If you do not wish to receive unsolicited email messages from us, please contact us at [email protected].

From time to time, our website may be configured to collect domain information such as the pages visited and links clicked. This data is collected for analytics purposes and enables us to become more familiar with which users visit our site, how often they visit and what parts of the site they visit most often. Ionis uses this information to improve our website. No personally identifiable information is gathered in this process. This information is collected automatically and requires no action on your part.

Periodically, some pages on this website may use “cookies,” which are small files that the site places on your hard drive for identification purposes. These files are used for site registration and customization the next time you visit us. You should note that cookies cannot read data off of your hard drive. Your web browser may allow you to be notified when you are receiving a cookie, giving you the choice to accept it or not. You can also refuse all cookies by turning them off in your browser. By not accepting cookies, some pages may not fully function and you may not be able to access certain information on this website.

Our website uses Google Analytics, a website analytics service provided by Google, Inc. (“Google”). Google Analytics uses cookies to analyze use patterns and may collect information about your use of our website, including your IP address. More information on Google Analytics can be found at:

Storage and Sharing of Information
Ionis, or in some cases third party companies and/or individuals that work with or for us, may store the personally identifiable data collected via this site in an electronic database. Ionis and these third parties may also exchange such data with each other or with you over the Internet or over intranet systems to process the data, send information to you in response to your request, or otherwise carrying out the purposes described above. We may also release your personally identifiable data in response to a court order, subpoena, search warrant, or applicable law or regulation. In such circumstances we will take appropriate measures to ensure that the requester understands the sensitive nature of the personally identifying information that they may receive.

While Ionis makes reasonable efforts to protect the personally identifiable data collected through its website, please be aware that there is always some risk involved when submitting data over the Internet. We cannot guarantee that our website is 100% safe from illegal tampering or “hacking.” Any data transmitted over the Internet may be at risk.

Children’s Policy
This website is not intended for, or designed to attract, children under the age of 13. As noted above, we do not collect personally identifiable information unless you provided it to us – including an individual’s age.

Residents of California

The California Consumer Privacy Act of 2018 (CCPA) and the California Privacy Rights Act of 2020 (CPRA) gives California residents the right to know what personally identifiable information we collect about them, including whether it is being sold or disclosed to third parties, and the right to prevent us from selling or sharing that information.  In addition, if you are a California resident, California law provides you with the following rights with respect to your personal information:

  • Right of Access/Right to Notice.  You have the right to know what personal information we have collected about you, how that information is used, and the third parties to whom the information is disclosed or sold.
  • Right to Correction. You have the right to request the correction of any inaccurate personal information we may have collected about you. However, we reserve the right to assess the nature and purposes of processing that personal information before completing the request.
  • Right to Deletion.  With limited exceptions prescribed by law, you have the right to request that we delete any personal information we have collected about you.
  • Right to Restrict the Processing of Sensitive Information. Sensitive information is a subset of personal information and could include information about race or ethnicity, sexual orientation, religious or philosophical beliefs, and health or medical information. You have the right to request that the use of such information, if provided to us, be only used to achieve the purpose(s) for which such information was collected or processed.
  • Right to Opt-Out of the Sale or Share of Personal Information.  Our use of cookies and online advertising tools may be considered sharing or selling of information under certain US state laws. Please see below for additional information on exercising your privacy rights.

To submit requests related to these rights, you may contact us as at [email protected].  You also may designate an authorized agent to make a request for access on your behalf. We reserve the right to deny requests as permitted by law. Your exercise of these rights will have no adverse effect on the price and quality of our goods or services. We do not discriminate against individuals who have exercised one or more of these rights.

Do-Not-Track Signals and Similar Mechanisms

Some web browsers may transmit “do-not-track” signals to websites with which the browser communicates. Our websites do not currently respond to these “do-not-track” signals.

Correcting or Updating Your Information
We are committed to respecting and protecting the privacy rights of any person whose personal information we are entrusted with. If you wish to review or correct the personal information you have provided us, please notify us at [email protected].

If you wish to stop receiving e-mails or other communications from us, or if you have submitted personally identifiable information through our website and would like that information deleted from our records, please notify us at [email protected]. Please note that we reserve the right not to remove or amend information provided to us regarding an adverse drug event or any information that we are otherwise required to retain by law or regulation.

Links to Third Party Websites
As a convenience to our visitors, this website may contain links to other sites that may offer information related to an inquiry, such as various patient or advocacy organizations. As stated in more detail in the Terms of Use for our website, these sites are not controlled or maintained by us, and the policies and procedures we described here may not apply to those sites. You should review the terms of usage and other conditions of use posted on those sites to determine the policies and procedures that apply to those sites. We supply these links as a convenience to you, and you agree and acknowledge that your linking to any other websites is at your own risk, and you are responsible for learning about and complying with the terms of usage and other conditions posted on those websites.

Privacy Policy Updates
Ionis may, at any time, revise this Privacy Policy by updating this posting. Data will be handled in accordance with the policy in effect at the time the data is collected.

For Additional Information
If you have any questions about this Privacy Policy, the practices of this website, or your dealings with this website, please contact [email protected] or [email protected].

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Last Updated: January 2023